haircuts and surgery #16 1/2

the count down is on for owen's redo surgery. i feel a lot more calm this time. just knowing how well he did going into it last time and also because it still may not happen again if we have the same issue with his heart.....i guess we will see.



so here's what you all have been waiting for :-) we cut noah's hair on friday!!!! first two pics are the most recent before pics and then the afters. nick absolutely loves it. i'm still sad to see the long hair gone but getting used to it.

sorry for the serious look....i was a little in shock!!!

first time out to eat after the cut noah still got called a girl by a stranger :-/

cute words from owen to make you laugh. today at sam's club he had a sample of dole frozen strawberries (strawberries are his fav fruit) when he was done he said " mmm mmm those were good. can i be a greedy cat and have some more?" he is such a nut!!!!! lol

livi's party pics

Here are Livi's B-day Pics. It was a bowling party at Diamond Bowl in Independence. It was so much fun!!!!

the fun balloons from my new favorite party store!!!!

owen could actually carry a 6lb ball!!!

my long haired monster with his uncle nathan

we have yet to make a decision on his hair cut

hair cut, bunnies and a 6 year old

we are considering cutting this crazy boy's hair......let me know what you think???????

with their Easter bunny baskets!!!!!

getting close to the same size owen 4 1/2 years old noah 1 year 2 mos

The 6 year old eating a b-day cookie that matches her shirt!!!!

nothing too exciting has been going on at hughes household until this weekend which is livi 6th b-day weekend. i can't believe my little baby girl is 6 years old. her party is this afternoon at 4pm so i will post pics later this week. we had a great easter last weekend. adaira stayed with us so the Easter bunny brought her a basket here as well. over the past few weeks i have been starting to really notice that noah is quickly approaching the same weight and height as owen. and i'm seeing owen get very frustrated with it because noah can completely take him down to the floor. owen being such a great big brother just lays there and yells for me to come help him get noah off of him because he doesn't want to hurt him or gets isn't strong enough ;-)

something cute owen said to make you smile: this morning we went to eat breakfast at our favorite "first watch" and when leaving nick said i'm so stuffed and then owen said "yeah, i'm stuffed like a chicken!!"

today while driving in the car something hit me. don't worry....i'm ok, something didn't hit me hit me. :-) i was listening to mix 93.3 doing there children's miracle network radio-thon for children's mercy hospital. and i'm listening to all the kids and parents tell their stories. then this one mom comes on that i actually know of, her husband went to school with my sister and i've heard of her daughters illness and their family struggle. she starts her story by saying just a few weeks before her daughter got sick she was listening to one of these same radio-thons and thought to herself i can't imagine what it would be like to be one of those moms, seeing your child sick, being completely helpless and having to rely on complete strangers to know what is right for them......and while she's telling this i'm thinking the same thing " i can't imagine what it would like to be one of those moms" and then it hit me.........i am one of those moms

cinco de mayo

hey everyone!!! so here is what's going on now. the cardiologist found nothing alarming with his heart so as a precautionary he put him back on a heart med that was taking about 2 years ago. and then we just keep our fingers crossed that works!!! they rescheduled his surgery for May 5th (cinco de mayo!!!). i took him to the kidney dr this week and his kidney function has gotten worse. he said it could be because of the growth hormone. he adjusted some of his meds and wants his blood tested again this friday. he can't move forward with the transplant until this other surgery is done. so i'll keep wishing and hoping that this heart med works and he can make it thru the surgery this next time. on a good note, owen seems to be happy and for the most part feeling good!!!! he doesn't like taking his new med, he says it taste yucky. every time i get it out he says "not again" :-) i love that little man!!!!

good weekend

we had i great weekend here at the hughes house!!! friday night we all went to natalie's house and made Italian in honor of my dad. saturday night we watched monster vs aliens with the kids...very cute movie!!! and today we all hung out at home in our pj's all day!!! i still haven't heard back from the cardiologist but as soon as i do i will let everyone know what the plan is for owen surgery. he seems to be feeling just fine. and we started the growth hormone back up this weekend after having to get it all straightened out with the pharmacy and insurance. the pictures are from st. patrick's day when we took the kids to disney on ice, we had so much fun!!!

today would've been my dad's 63rd B-day and i've done really good today. i think i'm all cried out from friday :-)

also if you get a chance check out last weeks episode of True Life on MTV called "i need a transplant" it's got a girl from olathe getting a kidney transplant and the donor is her mom. the transplant is at Children's Mercy her kidney doctor is owen's dr too and her moms surgeon is going to be nicks. it's kinda cool to watch and gave us at least an idea of how it will happen.

have a great week
am

:-(

March 19 2009 I lost one of the most important men in my life, My Dad. not a month as gone by i haven't thought i've seen him somewhere, not a week has gone by that i haven't wanted to pick up the phone and call him...speed dial #4, not a day has gone by that i don't wish i could see him with my kids, not an hour has gone by that i haven't thought about him, not a minute has gone by that i don't miss him so bad it hurts, and not a second has gone by that i don't love him more than ever. and here i sit with a whole year gone by knowing i will have to do this many many more times again. that thought is so completely unbelievable and still shocking to me because i don't want to go another year, month, week, day, hour, minute or even second without him........