i will start with july 25th......we went to children's mercy for owens 20th surgery. we had to wait a long time past his scheduled surgery time due to them squeezing in an emergency surgery, which really wouldn't be a a problem except for you can't eat for like 6 hours before a surgery. nick and i have a rule that we don't eat while owen can't eat but it's over for us once he goes into surgery. (we are seriously starting to rethink this rule) so finally owen gets taken back. he was his big brave usual self and walk right back with the nurses. so typically we go get something to eat once we get the call that the surgery has started. but on this day the call was that the dr wanted to talk to us :-/ not good.....owen's heart started having SVT (rapid beating) when they were trying to put him under anesthesia so they had to cancel the surgery. :-( this has happened before with a previous surgery. the good thing is owen didn't remember anything or know that the surgery didn't happen until we told him when we finally got to see him in the recovery room. the bad thing is that now none of us have eaten for hours.
owen being owen waiting for his surgery thank goodness for my iPad :-)
so in results of the SVT his cardiologist had him wear a heart monitor for a couple days then put him back on a heart med that he has been on before. this should get him thru the surgery next time. we waiting to hear back on a reschedule date. the part that stinks now is that he will have a cast on for six weeks of school, it not completely awful just not ideal.
since we had the sudden change in our plan we decided to do something completely different and spontaneous for us. we drove to chicago for a weekend trip. it was fun and different. we ate chicago deep dish pizza and chicago hot dogs. we went to the navy pier, ikea and the american girl store. our hotel had a pool and that's all the kids really need for it to be a fun trip. we can say we did it, we drove to chicago with three small kids and survived....well almost. the night before driving home nick started to not feel so great. he slept the whole drive home the next day. he had some kind of stomach bug and a sinus infection. (which i had an awful sinus infection the week before that) and then tuesday owen started to not feel good, seemed like the same stomach bug as nick. by friday he wasn't getting better and i became very worried that he could be getting dehydrated so we decided to take him to CMH, the kidney dr wanted us to bring to the kidney center to see him. and we've been here ever since. tomorrow will be day5. he is having awful diarrhea that had gotten him severally dehydrated and it is washing out all his kidney rejecetion meds. friday, saturday and most of sunday they had him on complete stomach rest/nothing in the mouth.....nothing! (me and nick's rule doesn't apply in that situation, we just don't eat and drink in front of him :-) those two and 1/2 days were complete torture hearing him cry for a drink or food every five minutes, then he'd cry to go home to get a drink, then he figured out he got a little water when he brushed his teeth so he'd cry to brush his teeth. they are giving him plenty of fluids all the vitamins and supplements he needs but he can't understand that. so today he could have all clears (water,apple juice & jello) and it's still not going so well with his labs and stool output. another thing that is not going so well is Liv. she is having a really hard time with this hospital stay. it doesn't help that the first day of school is wednesday and it doesn't look like we will be at home for it. it is breaking my heart to see her so sad. she had a birthday slumber party saturday night that i had to leave the hospital to pick her up from at midnight because she was sick. i think it was just nerves and eating to much rich food. then the last two nights when i've had to leave her she has cried. i've cried too. i had to tell her that owen needs me more right now which really isn't fair.....she needs me too :-( this unexpected hospital stay has been emotionally draining on me, i'm just doing whatever i can to get thru.
his left arm is puffy from a IV line they had in not working right but he thinks he has a really big muscle and is enjoying showing it off to anyone that comes in
he hasn't been able to wipe this smile off his face since he was started on clears......i love it!!!!
No comments:
Post a Comment