back home x2

so it goes a little something like this......owen was discharged from children's mercy on monday sept. 12th after being there for a whole month. tuesday we tried to get back to our normal life. owen went to work with me because he can't start school for at least two more weeks. wednesday we had to have owen in the kidney center from 8:30qm-1:30pm to have some blood test done. then on thursday we were trying again to have a normal life with owen at work with me. owen is still on a very bland diet. he is being such trooper about it, making it very easy for me to strictly stick to it. so right around lunch time on thursday he started crying, gaging, tossing and kicking saying that his belly hurt. he couldn't sit still and was sweating like crazy. after a few minutes of trying to comfort him and i decided to take him to the ER at children's mercy. his pain continued on there for 15-20 minutes. then when they were coming back in to give him a pain med he calms down and says "it's gone, im better now". blood test, urine test and x-rays didn't show any thing wrong that would be causing that kind of pain. while in pain he was screaming "somethings happening to me, it's getting bigger". the dr's think he was having a stomach spasm. being that his stomach is broken down so much by the infection they weren't surprised. since the pain stopped nick and i were hoping that we would just get to go home. owens dr's in the kidney center wanted to keep owen there over night just in case it happened again. so owen and i stayed there last night. then on friday (today) owen was discharged from children's mercy again. the pain never happened again....yay!!! so not really a good trying to get back to our normal life week. i'm beginning to feel like it will never be normal again or maybe i should just expect this to be our new normal. owen is being great with the new diet. which has brought on a new guilt in me, i feel guilty for being able to eat whatever i want. going 21 days without food has diffidently made him able to appreciate any food....even if it is bland. tonite at dinner i just about cried. the only thing on his small menu that sounded good to him was toast with butter. the rest of us were eating lasagna made for us by a great friend. a few minutes into the meal owen says "well, is it good?" my eyes teared up and it was good. how could i tell him that but i can't lie to him. so i said "it's pretty good buddy, im so sorry you can't have any" and he says "it's ok, i'll get to eat that when i'm not sick anymore" :-( he is just so amazing!!!! so tonite we are all sleeping at home again. i get to kiss all my babes good night and that's almost all it takes to keep me happy these days....

cute thing owen said this week....owen:i want to be a chef when i grow up....me:that sounds good.....owen:what are you going to be when you grow up?....me:i don't know but i'll let you know when i figure it out :-)