25%

They say the loss of a child is the worst loss someone can go thru.  Just the thought of losing a child can be paralyzing or make you do crazy things.  2 mos after Owen was born Nick and I were forced to go beyond it being "just the thought" by doctors during long board room type meeting where they threw all kinds of what-ifs, percentages, side affects, future surgeries and so on at us.  After they were done talking this female dr turns to nick and I to say "Let us know if you need more time to make your decision because there is also the loving choice of just letting him pass".   They had just told us his next step was open heart surgery with a 25% survival rate.  If he survived he would need multiple more surgeries including a kidney transplant by age 5.  At this point we were also told that Owen was completely blind.  We could tell he sensed light but that was it.  The answer was a no brainier.  25% is better than 0%.  Do everything humanly possible to keep him Here.....Here with us.  You all know the rest.  But I have never been able to forget the feeling of a dr saying to me "the loving choice of just letting him pass" 

Getting to hold Owen one last time before heart surgery