space aliens and micheal jackson

what a week!!!! It started with a extremely long day at Children's Mercy Hospital for Owen on Tuesday. we had to be there at 8:45 am to have 3 different procedures done 1st a Voiding Cystogram, next a Renal Ultrasound and last a Urodynamic Uroflow Study. following all that was a viait to the kidney doctor and lab to have blood drawn which got us out of there at 4pm. those 3 proceeders were being done to check the the condition of his bladder to make sure it could with stand the extra work the new kidney is going to bring on. i won't know the result until we go to the urologist on friday. sometime the week before owen started telling nick and i that he was allergic to "space aliens" so i told him to tell his doctors that. and what do know the first room we go into is in radiology and has this huge machine and a outer space mural painted on the wall and he slowly walks in and nervously says "i'm allergic to space aliens". during these studies i learned the he can hold a extreme amount of urine 500cc which a normal 4 yr old should be 150cc. they said the reason he can hold so much is because his right kidney has absolutely no function and acts as a 2nd bladder. watching owen do all this was extremely difficult for me, some parts were painful and he was able to tell me :-( Saturday night i had a Domestic Diva Shower and Bachlorette Party for my sister Natalie. It was crazy fun!!!!! And then today we had a training nurse out to the house to show us how to give owen his new growth hormone. he didn't like it at all and kept looking at me with a super sad face saying "why did you do that to me?? that weally weally hurt me" and the worst part is i have to do it everyday :-( i almost forgot, my favorite thing owen said this week......on the way to the hospital on tuesday micheal jackson's i wanna rock with you came on the radio and owen says "mama is this micheal jackson?"......now how the heck did he know that?!?!?!

he's just like him....

so fridays are a really hard day for me. it's the day after a week full of missed calls that i would call my dad back. he also passed on a thursday and every friday reminds me that i went one more week without him. everytime i talked to my dad he would ask me what was going on with owen's kidney and "the button". i have to admit that being asked this every time we talked annoyed me because nothing was ever really happening with it but now that things are i wish so much that i could call him that it sometimes is paralyzing to me. owen had his button removed in june and i couldn't even be happy about it because all i wanted to do was tell my dad. now i often think about owen and nick going into the operating room to do "the swap" and me sitting in the waiting room by myself and not being able to call him. so this last friday i was having a really really hard time because i was trying to start some planning for owen 5th b-day party. i want it to be amazing for him!!!! and in doing that i became so sad at the thought that my dad wasn't going to be there. he loved being owens grandpa. and he would be so fascinated by every single detail of the kidney swap, that it would probably annoy me ;-) , but that just who he was. and i really miss him. while i was having my pity party the boys were upstairs taking a nap. about an hour later i was up there doing laundry and i heard owen playing so i opened his door then continued doing laundry. owen came walking out of his room talking on a play phone. i asked him what he was doing and he put his little finger up at me and said "shhhh i'm on the phone" then in the phone he said "ok, wuv u" then he looked at me and said "that was my bapa, he said he's going to see yaya" bapa was my dad yaya is my mom....... i smiled at owen and then cried some more. owen never talks about my dad.

the pic is owen with his bapa when he was 1yr and 4months and bapa was donald duck.....

today owen asked me if he could have a snack. i said sure what do you want. he said orange cheese, an orange and a big meatball. i said i don't think i have any meatballs. and he said not meatballs...a BIG GIANT MEATBALL!!!!!........i just laughed and got him the cheese and orange :-)

owen just had a 12hr stomach bug because he was fine today. nick on the other hand had the bug this morning but seems much better tonight.

It has been an interesting week around here with Owen. he has made me laugh, so mad, and tear up all in one week. first for the so mad-this is so gross so brace yourself. 3 times this week he has played with his poop. i don't know why he would do that but i am hoping it never happens again. now for the laugh-on friday i went to the Independence Center with just the boys and we were walking into Victoria Secret and he says to me "mama has anut nat nat been in this store?" i say yes then he says "i thought so" while nodding his head. for those of you that dont know his anut nat nat is always wearing VS Pink. so now for what made me tear up- Owen had a first tonight that will go down in the baby book. He threw-up for the first time. He woke a from a nap saying that he didnt "feel so well". i brought him in my room and then he threw up!!! I'm hoping it's just a 24 hour stomach bug, he is peacefully sleeping right now. For the past 4 1/2 years he has gagged like he needed to throw-up but nothing could come until tonight (several times) something actually came up. when owen was still in the hospital they tighten the opening of his stomach so that nothing could come out when they put in his feeding tube because he had awful reflux. the dr. told us he would eventually grow out of it. which has finally happened!! don't get me wrong, im so sad that he is sick but so happy he finally grew enough for something to happen.

the other two kids are doing great. Liv started ice skating on sunday and absolutely loved it. Noah started walking!!! and needed his bangs trimmed for the 3rd time!!!

i will let you know how owen is doing tomorrow and try to put some pics on here

Amber

Okay....a new year has started and i'm trying out something new. having a blog is something that was suggested to me after owen was born but i didn't think that it was something i could handle at that time. but as blogs got more popular and i learn more about them i grew to regret not trying it out so i could have our family experiences, thoughts, worries and miracles from that extremely difficult time documented. i decided this would be a good time to in our family's story to finally jump into the blog world has i prepare our family for the "kidney swap" .