we are all checked in at children's mercy. from this point on everything in our life will fall into 2 categories-before the swap and after the swap. tomorrow will be the beginning of our life after the swap. this is going to be life changing for us. today while i still felt sick to my stomach and have had a pain in my chest i also feel kinda numb, like it's not real. i'm just going thru the motions. i've shed i few tear today but not near as many as you might think.
nick and owen are on the same floor but on the complete opposite ends of the hall. owen thinks its pretty cool that his dad has his own room at his hospital.
owen also thinks it's pretty cool that he can see "his" CCVI tower from his room window. CCVI is right the front of the KCPT building on 31st and main. you'd be surprise at all the places in the kc metro you can see that big red tower and owen is always pointing out by telling me "i can see my CCVI tower"
owen also thinks it's pretty cool that he can see "his" CCVI tower from his room window. CCVI is right the front of the KCPT building on 31st and main. you'd be surprise at all the places in the kc metro you can see that big red tower and owen is always pointing out by telling me "i can see my CCVI tower"
owen's last dinner. owen has always been on a low-phosphorus low-potassium and low-sodium diet, after the swap he should have no diet restrictions at all.....yippee!!!!! let the boy eats what he wants :-)
nick's last dinner. he would of loved to have a steak but at the kids hospital he had to settle for a cheeseburger and ice cream. i asked him "how did you like your happy meal?"
nick and owen both with their IVs in. nick did good and by good i mean he didn't pass out but he did lose all his color. owen on the other hand screamed the whole time like always. there was 8 of us in his room at the time and while he is the only one freaking out, the rest of us were completely silent, he was screaming at us "everybody clam down". it took everything in me not to laugh and just keep holding him tight so they could get the IV in.
i love this little face more than anything (well just the same as liv, noah and nick but you know what i mean) i don't know what i would do if i didn't get to see that face every day and get to hear his i love you-s. because of owen's kidneys he has felt sick everyday of his life. despite being sick he is one of the coolest kids to be around, you just know something amazing is going to come out of his mouth any second. the part of him that doesn't feel good cause some pretty frustrating parts about him. but the amazing parts always out weigh the frustrating parts. i know this kid inside and out. which is something that scares me about swap. will he change into something i don't recognize? i've only known him sick :-( will he still say amazing things? will he still tell me loves me 10 times a day? is it really "in spite" of him being sick that makes him amazing? i guess he will always be categorized as a sick kid but hopefully after that swap he will be able to feel as amazing as he makes everyone around him feel. only time will answer all my questions......
i'm going to try to get some sleep here tonite but i'm not to hopeful. sleep is something i'm not that good at and i've said it before....the sleeping options at this hospital are awful for the parents :-/ nick has been in his room for a couple hours so i'm sure he's asleep by now. owen has been in and out of sleep for a little while. he is having a tummy ache due to a med they gave him. my poor baby
always
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He is going to be more amazing..you all will be! He really is something special Amber you guys have done a great job!! I love you and I am sending prayers and happy thoughts your way today!
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