hello......at about 9pm owen finally was moved up to a regular room very close to nicks room. yay!!!! owen has been doing great today. still has some pain, to be excepted. his incision starts under his ribs and goes all the down into his diaper. he was able to start eating real foods today. that made him so happy to get to eat breakfast. i also got to hold him sitting in a chair. which brought back lots of memories that happened right there in that very same PICU 5years ago. it was so bitter sweet to be back in there, the best thing about this time is that when i say i love you he can actually say it back. :-) which also means he can tell me how much pain he is in which completely breaks heart, but i would much rathar have it this way over him being in pain and not being able to say anything....again bitter sweet. nick has also been doing great today. he has been moving around much more. he started eating a little bit. they think that he should be discharged tomorrow. as soon as owen was moved to his floor he walked on over to his room. he hadn't seen him since before surgery monday. he was ready and so was owen, he'd been asking about him all day. i finally got to take a shower about an hour ago. i'd been in the same clothes since monday :-/ no one complained but i'm sure i was stinkie. so far the only fear i had that came true was me being a stinkie mess. (knock on wood) but now that owen is in a room with a full bathroom the issue is resolved. yay for me!!!! tomorrow i will get some of the pics up from today.
love you all always
am
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Thank goodness he finally got his Breakfast:-) Makes me cry some more. It was bitter-sweet being in the ICU. 1. it reminds you how far he has come. 2. It makes you wanna give the Families in there a hug and tell them to hang in there, we have living proof.
ReplyDelete5 years ago, I remember wondering if he would ever get to come home and then the last year I was praying for the day he would go back there to get 1 good functioning kidney. It's overwhelming to be on the flip side of the surgery, it's like getting to see him at your house October 22, 2005 for the 1st time outside of Children's Mercy. I've always known how to pray, it's when the prayers get answered, I don't really know how to handle it. My heart just gets really warm and my eyes water a lot. But, now that I think about it Owen has that same effect on me;-). I used to wish he would get to live some normal kind of life. But, now "Normal" seems like such a small minded thing for me to wish upon My Incredible Nephew, Owen who is now kickin' it eatin' Breakfast with a Super-sized Kidney... Compliments of Nicholas Owen Hughes a hero and right now possibly the Oldest patient AT Children's Mercy Hospital;-) XOXOX Team Hughes for LIFE!
That's wonderful news about both of your men...glad to hear they are getting something in their tummies...and glad your getting a shower LOL...love the updates..:)
ReplyDeletesuch great news! it must have felt like Christmas there for everyone today.. Owen got his breakfast, you got to shower, and Nick got to see his boy!! :) love u all
ReplyDeleterhonda
YaY!!!!!
ReplyDeleteya ya
It's nice to hear that your boys are doing great!!!! How nice it is for you to have them on the same floor and for them to see each other. Your family has amazing strength!!!!!
ReplyDeletealycia yount
Great news sweetie, you give those guys a big hug and kiss from us. You are all in our prayers. Keep us informed. Love and Hugs, Tony and Carol
ReplyDelete