thanks Ellis family for the yummy and cute Halloween cookies!!!! perfect beginning for the best "foe" Halloween day for owen. there is even a Frankenstein.....his favorite!!!!!
owen's trick or treat on delaware street was such a blast!!! all my pictures don't do it's justice as to how many people were really there to support my little man. i think if i had to guess 150+...so amazing!!!! i couldn't never thank everyone who helped enough. my sister Natalie really put the whole thing together with lots of help from the salon gang, chelsea, tessa and my mom. plus all the family and friends that had trick or treat stations and brought yummy treats and courtney who dj-ed. all the friends and family that brought their kids so owen really thought it was halloween. thank you thank you thank you...forever thank you. i love you all always for loving my owen like you do. owen had such a good time. i think it was a little over whelming for him and he got real tired of me taking his picture but he was cutest vampire so i couldn't stop :-) we will cherish that night forever!!! my hopes are that we can do it every year as a fundraiser for CCVI and the national kidney foundation.
now that all the halloween fun is over the reality of what is about to happen has really sunk in to me and nick. we both have had sick to our tummy feelings all day. at times i've felt like there is a huge weight on my chest and i can hardly breathe. nick and i have had some hard and serious talks today about our fears. my biggest fears of course are for owen and nicks safety, then i fear that liv will throw her temper tantrums for our family that is taking care of her like she has been doing for us lately, i also fear that whenever the next time is that i get to see noah after tomorrow that he will hate me for leaving him. i also fear the surgery waiting room.....this will be owen's 17th surgery, and i have never sat in the surgery waiting room without nick :-( just the thought of it is making me cry right now so i'm not so sure how i'll do monday. we've been packing all day....liv for 2 places, noah for 2 places and owen, nick and i for the hospital.....for what could be 3-5weeks. thats breathe taking in itself. i think i have one bag full of all my PINK pants, i fear that i will run out of clothes and be a stinky mess. i fear i gain 100lbs of all this stress when i wish i could lose 100lbs from all this stress ;-) i fear i won't see the light at the end of this tunnel.......right now i'm going to take this time to describe what we've been told about how all this is going to go- tomorrow owen and nick have to check in to children's mercy between 2:30-3pm. they will each have their own rooms. nick gets to be at children's mercy, donors are the only adult patients. nicks surgeon is not from children's mercy he is from st lukes, dr moore, who we've met. owen will have to get some kind of fusion tomorrow night so he doesn't get mono because some test came back positive on nick and negative on owen. (sorry, i really don't know how to explain that better) and if any other numbers are off they will have time to fix them then. around 6:45am on monday they will start getting them ready to go to the OR. at 7:30 they will start surgery on nick. owen will go the the operating to be prepped and have several iv lines placed and a pic-line placed in his neck. owens actual surgery won't start till about an hour or so after nicks. nicks surgery should take about 2-3hrs. with owen they will be removing his last kidney before places nicks in. his surgery will last about 6-8hrs. the nurse told me we should get to see owen again around diner time :-( owen will go to ICU and will remain there until he can be weened off the breathing machine, which could take 1-2 days. they don't except it but said not to be surprised if he comes out with his belly not stitched up yet. he will get very swollen from all the fluids and because of the size of nick kidney in ratio to the size of owen. we will probably be able to see a bulge on owen where nicks kidney is until he grows into it. nick won't be able to go see owen until he is out of ICU :-( nick should only have to be inpatient for 2-3 days while owen will be there for about 3-5weeks.
once again thank you all for the perfect Halloween. i will do my best to keep everyone updated over the next few weeks. and thanks for all the well wishes, good thoughts and prayers :-) keep them coming
always
am
No comments:
Post a Comment