2 weeks from the swap

my weekend full of relaxing, re-charging, re-focusing and so on.....not so much. it wasn't all bad, we were all together. we had a great pizza movie night friday. toy story 3 and how to train your dragon are both so good. nick is feeling so good :-) still gets really sore when he does to much but has been off the pain meds for a few days now. noah is getting used to him not being able to pick him up. owen has had his ups and downs. sometimes he looks really swollen, then it goes away. he still doesn't want to drink anything. and he still has bad diarrhea. he spent most of the weekend sitting on his potty. it finally seems to be a little bit better today. saturday at about 11pm we got a call from a transplant doctor about owen blood sugar saying it was really high and we need to go back to the hospital sunday morning to re-do labs. so in the five days we've been home, we've gone back to the hospital 3 times. how could i find a routine with a schedule like that :-/ his labs did come back normal...thank goodness. we go back to the kidney center tomorrow (4 times in six days) i hope i feel better about him being home after that. i would like to say that owen has lots of moments of not feeling good these last 5 days but he also has had many were he seems to feel great and act like the old owen i know. like in the car....he sings every song, songs i didn't even know he knew. makes me smile from ear to ear on those drives back to the hospital. and i actually had to say to him "no, i don't think you should jump off the sofa right now" the new cath and meds schedule still seems difficult and crazy. the new home health care nurse came today and that was weird. i haven't had a health care provider come to the house in 2 years and i forgot how time consuming and a little invading it can be. but i'm still optimistic that it will get better and easier :-)

sitting on his potty looking at this wonderful snack/gift basket from our great friends

fell asleep on his potty watching tv

he can't take baths yet till his belly completely heals but he's too weak to stand up for very long so he sits on his potty seat in the shower. nick came up with a new name for him this weekend "crouching potty, sitting shower"


again and always....thank you to every one for your good thoughts, prayers, love, gifts, meals and help!!