it's back

it's been 4weeks!!!! we are home from owen's feeding tube surgery. we came home saturday evening. owen was so great, of course :-) his biggest complaint afterwards was that he was so hungry. he finally got to eat something around 7pm and was much happier then. getting fluid in him and giving meds are so easy now. no more forcing and crying. owen has almost been excited to have it back, like he missed it. he has said several times "my mickey button is back!!!!!" they are still adjusting his meds and right now the diarrhea is back :-( but over all is doing really good......i started this post last night, this is how far i got when i heard owen screaming in his room at about 11:30pm. he was having awful diarrhea and his poor little booty was hurting him. so he sat on his potty seat leaned over on his bed sleeping while i laid/slept on his bed till 3am. it got even worse this morning before it finally got better this afternoon. it is doing much better this evening. we went to the kidney center today and the dr is running some tests to make sure he didn't get a virus before he changes or adds more meds. he also has lost some weight (which is no surprise to me after seeing how much came out of him) but they don't like to see that so they will be watching him even closer then they were before. today i have been exhausted, sad and frustrated. it's hard to really put why into words it's just a lot of moments, thoughts, passing, comments and events that i can't seam to get out of my head. i am so ready for thanksgiving and some black friday retail therapy. owen has been getting so excited for x-mas and actually asked me in his sweet little melt your heart voice "do you think santa will bring me lots of toys?" my new favorite answers is "who can say no to the boy in the mask" :-)

here are some pics from our last hospital stay......

silly boy

tired of me taking pictures and really wanting to eat

ZZZZzzzzzzzzzz................

he loves the puppet made for him at Trick or Treat on Delaware Street

i need to get him one of these for x-mas.....does anybody know where to buy these at?????

at home using his feeding tube for the first overnight feed

nick, liv and noah were all great this last week. nick still says everyday he feels more back to normal than the day before. every morning liv asks to see nicks belly so she can check how good it looks....it's so sweet.

tomorrow i'm going to try to be rested, happy and hopeful.....it is thanksgiving eve!!!! i'm going to attempt to make red velvet cupcakes from scratch with the kids. should be messy but fun :-D