cinco de mayo

hey everyone!!! so here is what's going on now. the cardiologist found nothing alarming with his heart so as a precautionary he put him back on a heart med that was taking about 2 years ago. and then we just keep our fingers crossed that works!!! they rescheduled his surgery for May 5th (cinco de mayo!!!). i took him to the kidney dr this week and his kidney function has gotten worse. he said it could be because of the growth hormone. he adjusted some of his meds and wants his blood tested again this friday. he can't move forward with the transplant until this other surgery is done. so i'll keep wishing and hoping that this heart med works and he can make it thru the surgery this next time. on a good note, owen seems to be happy and for the most part feeling good!!!! he doesn't like taking his new med, he says it taste yucky. every time i get it out he says "not again" :-) i love that little man!!!!